“Mother’s intuition saved my baby’s life when doctors wouldn’t listen”

BC Mum Dina Assad
Dina’s instinct saved her son’s life
Picture Credit score: Equipped

“Karim was 10 months previous when he caught the hen pox virus. At first it was just some spots on his tummy, but it surely quickly unfold to a rash that took over his complete physique; his head, his face, even his eyelids. I rushed him to the physician, who confirmed it was a nasty case of hen pox, however stated there wasn’t lots that may very well be performed apart from to attend for it to get higher and deal with the fever with ache killers and the itching with lotions. I felt so helpless not with the ability to do something to assist my little boy. With hindsight I now know that the physician may have prescribed him an antiviral medication, however sadly he wasn’t given any. [See fact-box beneath for info on remedies for hen pox]

“That evening Karim wakened screaming in ache. His fever was 40 levels and the pain-relief medicine was doing nothing to assist. I held him shut and simply lay there on the ground with him all evening, making an attempt to ease his struggling. Finally I took him to the hospital once more, however the physician insisted there was nothing uncommon: “It’s simply hen pox,” he stated, and advised us to go house.

“Now this was one of many best-known and best-regarded hospitals in Dubai so I knew I ought to hearken to the physician, however I had a intestine feeling that one thing was actually improper. I begged them to maintain him in for an evening no less than, as he wanted plenty of fluids to fight his fever and he wasn’t accepting any. Fortunately they agreed.

“Two weeks later and Karim was nonetheless within the hospital. Since they admitted him he’d had a continuing fever and didn’t appear to be getting any higher; each time his temperature reached 41.5 levels the nurses would give him painkillers and antihistamines. They have been managing his signs, however there was no try and deal with the foundation explanation for it.

BC 10-month-old Karim at hospital in Dubai
10-month-old Karim at hospital in Dubai
Picture Credit score: Equipped

“The nights have been the worst. It wasn’t simply that the fever would spike, however the quantity of ache he was in was indescribable. He would scream in agony till the painkillers kicked in. Day after day the scenario gave the impression to be getting worse and we didn’t know what to do, we thought it simply wanted time, however time wasn’t therapeutic him. I used to be torn between being with Karim and taking care of his youthful brother; my husband and I’d take day and evening shifts. I’d go house on the finish of the evening to organize his brother’s lunch, permit myself to cry, drop the baby to nursery after which head again to the hospital for my ‘day shift’ with Karim.

The toughest half was coming house at evening. The home was so quiet, and but deafening within the absence of Karim

– Dina Assad

“I would appear to listen to Karim throughout the home, his voice and his laughter, his screams and his cries. I additionally missed spending time along with his brother terribly and felt so responsible for not with the ability to be round for him. We have been in Dubai throughout the summer time with no household round however with a couple of good mates who supported us until the top.

‘What I noticed made my legs tremble’

“One morning after I went to the hospital I discovered Karim asleep. This wasn’t uncommon so I simply waited for him to get up, however hours handed and he was nonetheless sleeping. The physician stated it was regular as they have been giving his antihistamines so he may chill out and never scratch himself. When he lastly did get up he wasn’t himself; he was drowsy, simply eager to sleep extra, he wouldn’t work together or eat or drink something. It was at this level that I felt I needed to do one thing. My intuition was telling me one thing was improper. I assumed that possibly if I gave him a heat bathe he would possibly revive and get up. I eliminated the bandages that they had wrapped round his physique to stop him from scratching and what I noticed made my legs tremble.

“His complete physique was crimson and swollen. His palms, abdomen and ft appeared as if he had a small balloon underneath the pores and skin. I attempted to make him rise up however his legs have been like jelly – he had misplaced sensation in each ft and all of the pores and skin in between his toes appeared as if it had been burnt.

I put him again into mattress with my coronary heart racing. I used to be on the verge of getting a panic assault, however I assumed ‘I should be sturdy, I should be there for him, there’s nobody else to be there for him however me’. I alerted all of the docs and so they ran biopsies, MRIs, mind scans, coronary heart scan, liver scan, and infinite blood exams.

BC Karim had sepsis, a life-threatening condition
Karim had sepsis, a life-threatening situation
Picture Credit score: Equipped

The analysis

“When the outcomes got here via the subsequent day we discovered that Karim had septicemia, or sepsis, a life-threatening situation trigger by the physique’s immune system going into overdrive to struggle an an infection, decreasing blood provide and doubtlessly inflicting a number of organ failure. In Karim’s case the an infection was brought on by staph micro organism getting into his physique via the hen pox lesions. It was terrifying to me that if I hadn’t determined to take away all of the sheets wrapped round him and to wake him up, nobody would have had seen what was taking place.

If I hadn’t performed something, no-one would have seen what was taking place

– Dina Assad

“The An infection had began on his pores and skin, then unfold to his blood, after which to his bones and joints. It typically can attain the guts too, however luckily it hadn’t but in Karim’s case. It was unimaginable to me that on a regular basis Karim had been struggling in hospital, writhing in agony and burning up with fever, the micro organism had been rising and not one of the docs had seen or appeared to care.

“Our ordeal continued. The docs began a course of remedy for the micro organism and Karim needed to endure each day scans. I actually can’t describe how I feeling at the moment. I used to be heartbroken, torn, hopeless, and I had no concept what the long run had in retailer for us. I would go away the hospital to see his brother with tears in my eyes and prayers in my coronary heart, so many prayers. I needed to break down however I saved telling myself to be sturdy. I needed to have braveness to face the docs and ensure they have been giving Karim the eye he so desperately wanted.

Learn extra: ‘The Mother Switch: how your hormones turn you into super mum’

A mom’s instinct

“In the future it occurred to me that, for the reason that an infection had made him numb from the hips down, may it’s that the micro organism had settled in his backbone? I’m no physician however this appeared to make sense to me, however after I recommended it to the medical workers they only ignored me. Karim was scheduled to have a full physique MRI to test which elements of his physique have been largely affected. The primary hour handed, then a second hour, and by the third hour I began to panic as I anxiously waited exterior the door for information. I used to be so nervous that I ended up urgent my ear on the door to seek out out if I may overhear what was taking place. The very last thing I heard was: ‘We’re sending the pictures to the radiology division urgently, please test what’s there on his backbone’.

I closed my eyes then and willed myself to remain calm, hoping that maybe I had misunderstood. Lastly the physician got here out and requested us to have seat. “Your son just isn’t effectively,” he stated. “I’m sorry. We don’t know if he’s going to make it. Should you can discharge him from the hospital and put him in one other one it could be greatest for him. The micro organism has unfold to his joints, palms, ft, abdomen and his backbone.”

After I heard ‘backbone’ I misplaced it. All I keep in mind is leaping out of my seat, shaking the physician, ripping off his tie and his ineffective robe. ‘It’s all of your fault,’ I screamed. ‘I used to be telling you all final week about his backbone and also you wouldn’t hear! You weren’t listening to me!’

That’s all I recall, shouting and dropping my mood. His reply was: ‘I’m so sorry ma’m however you already know you could possibly have misplaced your son.’

I had a complete breakdown and nothing would cease me from crying.

– Dina Assad

How may I’ve left my son with them? What had they performed to him? I so missed him and needed him again with us as a household; his brother missed him, his father missed him, the home, our souls missed him. How can the guts of a mom survive seeing her son in a scenario like this?

Flying to Lebanon

The subsequent day we discharged him from the hospital and flew to Lebanon our house nation the place the docs stated they have been capable of deal with him. I needed to carry him on my chest the entire flight as he was unable to maneuver from head to toe. My coronary heart was shattered to items as I additionally needed to go away my different son in Dubai along with his father since they have been unable to journey with me at the moment. We flew on an emergency foundation and went straight to the hospital the place the process was once more traumatizing: extra scans, blood exams, admissions and so forth.. I overheard the docs say, ‘he’s a fortunate boy to have had made it via’.

Karim stayed within the Lebanon hospital for 2 and a half months, lastly getting the correct remedy. It wasn’t simple, however no less than we knew deep down that there was hope and the medical workers would do something to rescue him. It wasn’t simple having to stay in a hospital for months, however I bought used to it.

BC Karim recovering in the Lebanon hospital
Karim recovering within the Lebanon hospital
Picture Credit score: Equipped

As soon as we have been discharged Karim’s restoration interval was additionally robust. It took him some time to be taught to eat once more, stroll, transfer his joints, and adapt to the skin world. Each a part of his physique was deeply affected. It was nearly like he had been born once more and I needed to stroll with him step-by-step till he was on his ft once more. His remedy additionally continued after he was discharged from the hospital; he was on a number of totally different antibiotics per day, and I needed to give him injections thrice every week to strengthen his immunity and defend him from another an infection.

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This text was first printed in 2017

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